CONSORTIUM INAUGURAL MEETING — THURSDAY, OCTOBER 12, 2017
WHAT WILL THIS BE?
The purpose of the North American (NA) Spinal Cord Injury (SCI) Consortium (NASCIC) is to bring together the many organizations in North America that advocate, represent, or communicate with people living with SCI, their family, and caregivers. The consortium is not designed to replace the member organizations, but to provide a platform for communication, advocacy, and representation of shared goals to the larger community. There are many issues to tackle with SCI: care vs cure, rehabilitation, independent living, secondary conditions, employment, to just name a few. All of these issues are important. The initial thrust of this consortium will focus on research and connecting the research community with the SCI community; later topics will be decided upon by the consortium members. SCI research is quickly progressing and people living with SCI need to be equitable partners along the continuum of research to ensure the end results are a) oriented toward their needs, b) clinically relevant, and c) transparent to better enhance uptake.
Creating a governance structure is the first logical step toward bringing the NASCI Consortium to life. With this in mind, an inaugural meeting with representatives of many SCI consumer-oriented organizations is being planned.
This one-day gathering will be held on October 12, 2017 at the Hilton Miami Airport. One to 2 representatives from organizations in North America representing persons living with spinal cord injury, their families, and care-givers may participate in this meeting.
- The goals of this meeting are:
- Discuss and finalize the governance structure of NASCIC
- Individual organizations officially join NASCIC as members
- NASCIC members vote to adopt the charter
- Discuss the first project(s) for NASCIC