Many throughout our community have heard about the upcoming meeting “SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research” being hosted by the National Institutes of Health (NIH) February 12-13, 2019. The Executive Council of NASCIC has been invited to speak in one session of this meeting.
At this meeting, we are trying to represent the SCI community to the research field as people living with SCI (and family/caregivers), as well as our respective organizations. To inform our session we sought input through a survey and we will relay the summary responses of the 1800 people who informed us of their opinions through that survey. Another venue is to support the open letter endParalysis has posted to the NIH conference organizers. Our overarching common goal is that we all want the results of research to truly improve our lives now.
We encourage people to reach out to the contacts at NIH/NINDS who are listed at this link: https://meetings.ninds.nih.gov/Home/Contact/21041 to share your opinions.
We also encourage people to attend the live streaming and archived video of the meeting that will be available at: https://videocast.nih.gov/
NASCIC will be creating a summary report of the meeting, the survey results, and suggestions of next steps for the future. We welcome feedback from our members. Look for this in March.